Helaine Baruch's Walk
My Appeal
Funds raised in Walk to Wonders will support the Foundation’s education, patient support, and research programs. These programs reach more than 175,000 patients, families, and physicians around the world annually.
My Progress
Helaine is walking 250,000 steps and raising funds for The Marfan Foundation Inc.. Please show your support and donate generously.
599,271.0 STEPS done
250,000 steps
My Cause
The Mission: The Marfan Foundation's mission is to save lives and improve the quality of life of individuals with Marfan syndrome, Loeys-Dietz syndrome, VEDS (vascular Ehlers-Danlos syndrome), and other genetic aortic conditions.
About the Organization:
The Marfan Foundation’s mission is to save lives and improve the quality of life of individuals with Marfan syndrome and other genetic aortic conditions. The Foundation works tirelessly to advance research, serve as a resource for families and healthcare providers, and raise public awareness.
The Marfan Foundation continues to expand to better serve the community affected by genetic conditions related to Marfan syndrome. In October 2019, the Foundation launched The VEDS Movement to provide research, education, and support for the community of people with Vascular Ehlers-Danlos syndrome (VEDS), a genetic condition related to Marfan syndrome. The Loeys-Dietz Syndrome Foundation became a division of The Marfan Foundation on July 1, 2020, and the GenTAC Alliance, the community of stakeholders committed to advancing the understanding of genetically induced thoracic aortic diseases and their treatment, will follow suit on October 1, 2020.
Recent Donations
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