ABOUT THE ORGANIZATION
Impacting the world together, one story at a time.
The EBF3 HADDS Foundation was created to promote awareness, research, and support for individuals and their families living with EBF3 HADD Syndrome, a genetic syndrome discovered in 2016. We strive to raise educational awareness and funding for research so that every person with HADDS, has a supportive community, is able to reach their full potential, can access the most current educational/therapy materials and have access to the most current research. It is the Foundation’s priority to be ethically and financially responsible when advancing our mission in the areas of research, education, support and advocacy. We are ambassadors for inclusion, welcoming and facilitating an environment of hope, belonging and community for all impacted by HADDS globally.
To enhance the lives of people with HADDS through research, education, support and advocacy.