ABOUT THE ORGANIZATION
Tay-Sachs and Canavan testing in every generation for generations to come.
NTSAD-DV’s goal is to ensure that all at-risk adults who may be carriers for the Tay-Sachs or Canavan gene learn about these diseases, have medically accurate carrier screening available and accessible to them, and receive the proper genetic counseling to make informed decisions for a healthy family.
We strive to achieve these goals through: sponsoring year round free screening for Tay-Sachs and Canavan diseases; aggressive public awareness and information campaigns; free educational materials and public speakers; maintenance of a repository of specialized knowledge; serving as a referral network and resource center for affected families and couples at-risk, and advocacy for prevention. NTSAD-DV is funded through private foundation grants, corporate sponsorships, and voluntary contributions. A volunteer Board of Directors governs National Tay-Sachs & Allied Diseases Association of Delaware Valley. Programs and services are implemented by Board members, staff, and friends and supporters in the community.
National Tay-Sachs & Allied Diseases Association of Delaware Valley is a non-profit voluntary health agency dedicated to the prevention and ultimate elimination of Tay-Sachs disease, Canavan disease, and related lysosomal storage diseases (the allied diseases).