Charity Footprints Partner - Xia-Gibbs Society Inc.

Xia-Gibbs Society is a non-profit formed to support the Xia-Gibbs Syndrome community.

Xia-Gibbs Society is a global, US-based non-profit (501c3) organization. Our mission is to provide support to and advocate for those with Xia-Gibbs Syndrome and their families and to foster hope for the future. The Society also aims to raise awareness about Xia-Gibbs Syndrome among the medical and general community and to support, fund and promote scientific and medical research. Our organization is made up of a Board of Directors, a Scientific Advisory Board and a few staff members, all of whom are volunteers. Together we represent our global community, which we engage with through our social media page and private family and community groups. Our programs include Family Conferences and Research Grants. Xia-Gibbs Society is a member of the Global Genes Global Advocacy Alliance and the National Organization for Rare Disorders (NORD).

Our Mission

Xia-Gibbs Society is a not-for-profit corporation formed in the USA for charitable purposes. Our mission is to support and advocate for those with Xia-Gibbs Syndrome (XGS) and their families, to raise awareness and to assist with scientific and medical research.